Megan’s 500 Mile(stone) Strut Updates

Welcome to our Fundraising Page

  • Megan’s Progress 36.93% 36.93%

Megan is walking over 1 million steps to secure our place in the BigGive Christmas Campaign which brings in match funding and pledges, thereby increasing the amount we can raise (and expanding how many people we can support)!

We will post regular updates in our newsletters, on this page and in the BigGive site itself.  Please join our mailing list, if you haven’t already. We haven’t had a moment, so we’re officially launching it today.  Megan began strutting on the day the Chartered Institue of Housing Awards Event.  She will provide updates about each milestone ongoing.

Milestone 1: The ‘Lifetime Achievement’ Nomination

27 June, Manchester

Megan Karnes, our Founder and Chair, talks about her CIH Lifetime Achievement Award Nomination


27 June Miles

27 June Steps

28 June Miles

28 June Steps

Cumulative Total:  19,857 steps (to go = 1,036,143)/8.42 miles (to go = 491.58)

Milestone 2: The Hyphen-Zero Birthday (Year)

29 June, London

Megan’s Statement

In the year before the actual day, my grandfather stated that he was in his ’81st year’.  He counted the days up to the turn because… you’ve lived a year by the time you’re one.  Always made sense to me 😊

As such, I’m beginning my 60th year celebrations on 29th June 2022 (really 2023, but you get my drift).

In 2008, I began the journey of fighting for human rights for people who hoard.  Despite being the second highest prevalence of mental disorder, it is still being treated as if removing the symptom of the trauma and distress is the ‘solution’.

I’m asking that this year as a celebration of a hyphen-zero birthday (to come) and this honour in nomination (can’t get ‘lifetime’ anything at 20!) – that you give.  That you care about this extraordinary group of people whose distress you see… but continues to be ignored.

For my birthday, I chose to honour my mother, by going to see the Van Gogh Immersive near Spitalfields.  Starry Night was one of her favourite paintings.  Perhaps her own struggle with rapid-cycle bi-polar disorder made his work more resonant.

It was hugely enjoyable, perhaps even more than I’d imagined!  For me, I found new works and was particularly drawn to Four Cut Sunflowers.  I had never seen it before, and to this day it has stayed with me.

29 June Miles

29 June Steps

30 June Miles

30 June Steps

Cumulative total:  33,804 steps (to go = 1,022,196)/14.31 miles (to go = 485.69)

Milestone 3: 50 Years of London Pride

1 July, London

Megan and her partner of 25 years  marched proudly at the celebration of 50 years of the London Pride Parade, alongside East London Out Project (ELOP), where Megan has delivered clinical supervision for over 10 years (another milestone of sorts!). 

Over one million people attended to celebrate!

1 July Miles

1 July Steps

2 July Miles

2 July Steps

Cumulative total:  57,373 steps (to go = 998,627)/24.35 miles (to go = 475.65)

3 July Miles

3 July Steps

4 July Miles

4 July Steps

Cumulative total:  74,202 steps (to go = 981,798)/31.98 miles (to go = 468.52)

Milestone 4: Dr Who?

4 July, London

Megan’s Statement

As many of you know, I am wishing to undertake hoarding specific research.

I’ve been accepted into a Doctoral Programme at Middlesex University.  I am (struggling) moving ahead with various tasks, one of which was to submit a draft of my abstract (short version of research question, methodology, etc.) for a conference.  I (largely) do what I am told.  I did this.  It got ‘selected‘ which meant I had to design a poster and present it at that conference.

If you could have seen the other posters, (not literally but close), diagrams of the history of time and how the researcher was seeking the answer to some gripping question.  I joked with my tutors, quoting a dearly cherished friend, that I didn’t exactly ‘blend‘.  Absurdly, my poster ‘won‘ (I genuinely did not know it was a competition).

I am connecting this to 4th July because the next day we went on holiday and I had £75 prize money voucher in my Amazon account! I use and donate regularly to hoardinguk as my chosen charity… so percentage of the monies will go back in to support our work.  It was agreed that as I do not take a salary (and have not ever), that I should accept this personally.  I decided to replace my tattered old rucksack. See images of my poster and new rucksack.

5 July Miles

5 July Steps

6 July Miles

6 July Steps

7 July Miles

7 July Steps

Cumulative total:  124,548 steps (to go = 931,452)/52.81 miles (to go = 447.19)

Milestone 5: Holiday Park

8 July, Camber Sands

Megan’s Statement

I’ve lived in the UK for 23 years.  While I feel at home, my story is different to those born and raised here.  Each year (other than Covid, of course) we travel within the UK.  I try, as well, to experience things that are uniquely British.

This year, I had to work on my actual birthday, so we took off a few days the following week and visited ParkDean Camber Sands.

Crazy golf (lost 2:1)
Swimming pool
Played Bingo
Took long walks on the beach

I’m not allowed to buy mugs anymore, because I have too many – but was allowed a magnet!  I also brought back a single shell to add to our small collection.

I had no idea what the long rectangular shell was – but know now it must be a razor clam shell.

8 July Miles

8 July Steps

9 July Miles

9 July Steps

10 July Miles

10 July Steps

Cumulative total:  150,265 steps (to go = 905,735)/63.70 miles (to go = 436.30)

Milestone 6: Masterclass & Support Group

11 July, London/Gloucester

Last week we delivered our Choice & Control in Hoarding Disorder for the Chartered Institute of Housing Masterclass.


CIH Training

And the first session of the Gloucester Support Group.  This will be meeting the first Thursday of every month beginning in September.

We have had meetings at two different locations, so this will need to be confirmed.

If you are a professional working with people who hoard or a person who hoards who would like to participate in the six month training/support group development programme, please contact us.

11 July Miles

11 July Steps

12 July Miles

12 July Steps

13 July Miles

13 July Steps

14 July Miles

14 July Steps

15 July Miles

15 July Steps

16 July Miles

16 July Steps

17 July Miles

17 July Steps

Cumulative total:  174,702 steps (to go = 855,851)/84.94 miles (to go = 415.06)

Milestone 7: CEO & Blackburn Support Group

18 July, London/Blackburn

The HUK Team had its first meeting attended by our new upcoming CEO, David Pearce. 

Megan also delivered Choice & Control Open Day training, which included the first day of training for inducting our new volunteers. 

Please click here to become a volunteer and support our work. 

Plus birthday celebrations contine!


SisterAct Poster
SisterAct Poster

Megan delivered the penultimate Support Group Development programme in Blackburn. 

Travel to Blackburn for the SGD project

Megan statement:

The day after temperatures resulted in melting streets, I arrived at Euston Station early – knowing that travel would be chaotic at best.  Train after train cancelled until I was, finally, able to get on an 11am service. 

Arriving in Blackburn, it was refreshing to feel the cool air and seeing the welcoming face of Edward Brown  This piece of work has been such a positive experience.  Improving practice and support for people who hoard.”


Virtual training delivered for UK supported accommodation provider. 

Trustee Sharon Degen attends Laura Horton’s play, Breathless, in Plymouth.  Laura’s work is covered both in VogueUK  and by the BBC.

18 July Miles

18 July Steps

19 July Miles

19 July Steps

20 July Miles

20 July Steps

21 July Miles

21 July Steps

22 July Miles

22 July Steps

23 July Miles

23 July Steps

24 July Miles

24 July Steps

Cumulative total:  226,136 steps (to go = 801,995)/119.99 miles (to go = 380.01)

Milestone 8:  Support Groups & Holiday

25 July, London/Ireland

This week, Megan hosted Chairing Positive Change, the free fortnightly case support session for professionals supporting people who hoard.

Hosted LGBTQAI+ Support Group, the monthly hoarding support group for people who hoard.

Delivered clinical supervision for our In-Home Support team.

Delivered penultimate Thurrock Support Group development session.

And attended a complex multi-disciplinary conference about a hoarding case in the North of England, amongst other serious case management issues across the UK – which happen daily with someone from the HUK team engaging.

And after a busy week, Megan will be on annual leave until 15 August.  We will update you upon her return.   


Postcard from Ireland

25 July Miles

25 July Steps

26 July Miles

26 July Steps

27 July Miles

27 July Steps

28 July Miles

28 July Steps

29 July Miles

29 July Steps

Cumulative total:  251,467 steps (to go = 776,664)/130.70 miles (to go = 369.30)

HUK Strapline